I wanted to write a short update so no one is left hanging and you guys are aware of how Patrick is doing.
He isn't joining any aquire dance classes (yet) but he was up and standing yesterday for a few minutes, and again this morning. His IV ports have been changed, requiring one in his wrist that is sutured to his skin, and the big one in his neck also held in with a suture. They are both uncomfortable.
He developed a clot in the artery in his right wrist where the initial IV was but they are allowing his body to naturally dissolve it.
We did have a bit of activity on Sunday night after my visit. The hole where the balloon pump had been inserted into his femoral artery ruptured, and had he not been awake with a nurse in the room its possible we could have lost him. Thankfully it had nothing to do with his heart and all of that is going well, but that night he needed a blood transfusion.
He is extremely nauseous around the clock, as soon as he invests anything including meds and water. Because of this he hasn't been eating as much as he should. A dietician came in during my morning visit and talked to us about the possibility of having a feeding tube placed if the nursing staff and doctors couldn't find a solution for the persistent nausea.
He also wants a shave. I have never done that, so if I attempt it, there is a good chance he will need another blood transfusion.
Also, we have had so many people inquire about a Go Fund Me that I'm planning on opening one sometime today. I will announce it here. We have a long road ahead of us, as the kids and I will be returning home in about a week to resume school and reopen our shop. The financial help so many of you have offered has and will help tremendously.
Thank you for sticking with us through this trial! ❤️
** Also, KUAC posted a radio story they did of Patrick's journey. Give it a listen! https://fm.kuac.org/
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